Big Pharma Sucks!

My wife has an illness that requires one particular medication.  Not a medication similar in compound.  Not a medication somewhat comparable in it’s benefits.  Zyprexia provides her with the only relief.  How do we know?  Well, up until 10 years ago, her ‘team’ of doctors were still scratching their heads about her med regime.  In and out of different hospitalizations and different cocktails of pills: Were going to be a way of life for Megan.

Fortunately, as a last resort, Zyprexia was administered.  And, since then, she has had fewer and fewer inner conflicts and hospital stays.

Her medication cost about $500. each month!

My question is simple:  How much money is too much money?  Big Pharma, let us face it, has a strangle hold on society.  If one does not need medication to live.  They know someone that does.  We are a captive audience.  Where are elected officials?  Why is this not a disgrace to the nation as a, whole?

 

http://chng.it/hrdwkHvgMd:Stop Big Pharma’s Plot to Keep Drugs Unaffordable!

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jezebel.com/disability-rights-advocate-carrie-ann-lucas-dies

On Sunday, long-time disability rights activist and attorney Carrie Ann Lucas died from complications from an infection after she went into cardiac arrest, which resulted, according to her friends and family, from her insurance company’s denial of a necessary medication. She was 47.

Lucas, who had a rare form of muscular dystrophy and used a wheelchair as well as a ventilator, spent her life fighting for the rights of people with disabilities, from working to expand and protect the rights of parents with disabilities to advocating for increased health care access. She grew up in Windsor, Colorado and was a teacher and a pastor before becoming a lawyer. She founded the group Disabled Parents Rights, with the goal of assisting parents with disabilities, work that was informed by discrimination she experienced when she attempted to go through the adoption process. She also fought against passing physician-assisted suicide laws. In 2017, as a member of the disability rights group ADAPT, she was one of several people with disabilities who were arrested during a sit-in held in protest of Republicans’ planned cuts to Medicaid.

A February 24 post on her Facebook page states that Lucas “died after an arbitrary denial from an insurance company caused a plethora of health problems, exacerbating her disabilities and eventually leading to her premature death.” More details from the post:

Because Carrie Ann worked for the state, she had use state insurance which was primary ahead of her Medicare and Medicaid. In January of 2018 she got a cold which turned into a trach and lung infection. Her insurance company UnitedHealthcare, refused to pay for the one specific inhaled antibiotic that she really needed. She had to take a less effective drug and had a bad reaction to that drug. This created a cascade of problems, loss of function (including her speech). United Healthcare’s attempt to save $2,000 cost over $1 million in health care costs over the past year. This includes numerous hospitalizations, always involving the Intensive Care Unit which is par for the course for ventilator users.

In her final blog post from January, Lucas wrote about the impact of spending a significant portion of the past year in the hospital:

In the last nine months, I’ve spent a total of eight weeks in the hospital. Some hospitalizations were shorter, 2 and 3 days, and over a weekend. Others have been longer 8-, 9- and 10-day long grinds like this one. In these nine months, I left one hospital against medical advice to transfer myself to another hospital because of inadequate care, acquired additional infections from the hospital, and suffered more medical mistakes than I can count.

When confronted with these realities time and time again during hospitalizations, the trauma builds. One can only be told you are incorrect, only to have someone come back later and confirm you were correct so many times. One can only correct medical mistakes so many times. One can only handle the disruption in any sort of routine so long. The loss of autonomy and uncertainty in the hospital is trauma inducing. Each hospitalization is worse because I have not had enough time between hospitalizations to allow my emotions to recover. This trauma is unacknowledged by physicians, and they fail to understand how their actions and patterns are creating trauma which simply exacerbates the situation. Instead we patients are left in a puddle of tears with few tools to help ourselves because we have no control, and face only uncertainty.

In a remembrance from the Civil Rights Education and Enforcement Center, which gave Lucas an award in 2016, the group wrote: “Carrie may have been the only wheelchair-using Latina with a bumper sticker reading ‘just another disabled lesbian for Christ,’ dressed in camo, driving her trak-chair into the wilderness in search of the perfect photo.” The group added: “We are very grateful for all Carrie has taught us about disability rights and intersectionality, and for being a brilliant and hilarious colleague and friend.”

Lucas is survived by her four adopted children and her partner Dr. Kimberley Jackson. “She was an amazing person who dedicated her whole life to helping other people and I just miss her so much and so will the disability community,” Jackson told the Coloradoan. “We have a similar disability and she understood me like no one has before.”

A February 24 post on her Facebook page states that Lucas “died after an arbitrary denial from an insurance company caused a plethora of health problems, exacerbating her disabilities and eventually leading to her premature death.” More details from the post:

Because Carrie Ann worked for the state, she had use state insurance which was primary ahead of her Medicare and Medicaid. In January of 2018 she got a cold which turned into a trach and lung infection. Her insurance company UnitedHealthcare, refused to pay for the one specific inhaled antibiotic that she really needed. She had to take a less effective drug and had a bad reaction to that drug. This created a cascade of problems, loss of function (including her speech). United Healthcare’s attempt to save $2,000 cost over $1 million in health care costs over the past year. This includes numerous hospitalizations, always involving the Intensive Care Unit which is par for the course for ventilator users.

In her final blog post from January, Lucas wrote about the impact of spending a significant portion of the past year in the hospital:

In the last nine months, I’ve spent a total of eight weeks in the hospital. Some hospitalizations were shorter, 2 and 3 days, and over a weekend. Others have been longer 8-, 9- and 10-day long grinds like this one. In these nine months, I left one hospital against medical advice to transfer myself to another hospital because of inadequate care, acquired additional infections from the hospital, and suffered more medical mistakes than I can count.

When confronted with these realities time and time again during hospitalizations, the trauma builds. One can only be told you are incorrect, only to have someone come back later and confirm you were correct so many times. One can only correct medical mistakes so many times. One can only handle the disruption in any sort of routine so long. The loss of autonomy and uncertainty in the hospital is trauma inducing. Each hospitalization is worse because I have not had enough time between hospitalizations to allow my emotions to recover. This trauma is unacknowledged by physicians, and they fail to understand how their actions and patterns are creating trauma which simply exacerbates the situation. Instead we patients are left in a puddle of tears with few tools to help ourselves because we have no control, and face only uncertainty.

In a remembrance from the Civil Rights Education and Enforcement Center, which gave Lucas an award in 2016, the group wrote: “Carrie may have been the only wheelchair-using Latina with a bumper sticker reading ‘just another disabled lesbian for Christ,’ dressed in camo, driving her trak-chair into the wilderness in search of the perfect photo.” The group added: “We are very grateful for all Carrie has taught us about disability rights and intersectionality, and for being a brilliant and hilarious colleague and friend.”

Lucas is survived by her four adopted children and her partner Dr. Kimberley Jackson. “She was an amazing person who dedicated her whole life to helping other people and I just miss her so much and so will the disability community,” Jackson told the Coloradoan. “We have a similar disability and she understood me like no one has before.”

 

 

Stoned Sprites

A friend of Lucifer…I am not.

But the intrigue is palatable.imageedit_15_7752253949

Stone sprites reaching from beyond the chilled rain.

Professing living and not learning…from the grave.

Deep in my secret soul is retribution with a hint of shame.

Yet, offerings of billowy pills ascend beyond the pain.

A Little Bit of Everything

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It is a life filled up of everything…And, everything in between!

“OH, it’s a little bit of everything…It’s the mountains…It’s the fog…It’s the news at 6 o’clock…It’s the death of my first dog.

It’s the angels up above me…It’s the song that they don’t sing…It’s a little bit of everything.”

     There’s an older man who stands in a buffet line.  He is smiling and he’s holding out his plate.  And, the further he looks back into his timeline.  That hard road always led him to…today.  
     Making up for when his bright future had left him.  Making up for the fact…his only son is gone.  And, letting everything out…

His server asks him,

“Have you figured out yet…What it is you want?”

“I want a little bit of everything.  The biscuits and the beans.  Whatever helps me to forget about the things that brought me to my knees.  So, pile on those mashed potatoes.  And, an extra chicken wing.  I’m having a little bit of everything!”

     Somewhere a pretty girl is writing invitations.  To a wedding she has scheduled for the fall.  Her man says,

“Baby, can I make an observation?”

She said,

“You just worry about your groomsmen and your shirt size.  And, rest assured that this is making me feel good.  I think love is so much easier than you realize.  If you can give yourself to someone…then you should.”

‘Cause it’s a little bit of everything.  The way you joke.  The way you ache.  It is the getting up before you.  So I can watch you wake.  So, on that day in late September, it’s not some stupid little ring…I’m getting a little bit of everything…’

     Oh, it’s a little bit of everything.  It’s the matador and the bull.  It’s the suggested daily dosage.  It’s the red moon…When it’s full.  All these psychics and these doctors.  They’re alright.  And, they’re all wrong.  It’s like trying to make out every word.  When they should simply…hum along.  It’s not some message written in the dark.  Or, some truth that no one’s seen…

It’s a little bit of everything!

lone 1
##Brad and Brett Warren, Kevin Rudolph

 

Enduring the Cure

Ever and again, the weather proofing erodes from my armor.

And, I am left with only rust.100_0871

A state of vulnerability…nonetheless.

No matter how I clear the track of every obstacle and fuss.

False idols accompanied by menacing medicine men…

Offer up a pack of true lies.

Though, I have never been a saint by anyone’s surmise.

Even my chipped shoulder tenders in their disguise.

The tarnished native naivety around my aches?

Only a means for the scar tissue to keep me upright.

Healing foe are forever in their mechanical forest.

Await, await, await.

Awaiting my guarded departure.

Hazards of needles, placated steriods and placebos…smoke screens for?

I know not what.

Ever and again, I step into the thicket, enduring the cure.

When Hate Walks In

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When love walks in the room…

Or,

when hate rises from the cluttered culvert…

No attention served.

Least of all, never as notable as a, piercing, raven’s coo.  

That touches every last nerve.

Only human, after all,

When pleading…

we have had no hand to the inhuman awl.

Unaccountable…

When fiendish fences,

our neighbor’s install.

How happy am I?

Daily meditation…

sedation without medication.

Careless, carefree,

earthbound warrior…

Willing to act up.

But invariably,

with hesitation.

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